Office of Steam Forum for Model & Toy Steam Gas & Hot Air Engines

G'day everyone and thank you one and allfor the wonderful comments and also emails that I have recieved.
Its so very very much appreciated.

I've had two treatments of the IV/IG transfusions now and booked into hospital tomorrow as a day patient to have the third. My neurologist thinks that because I have responded to the treatments so well, its likely that it will be a monthly thing forever. At $8000.00 per bottle of the antibodies I am glad I'm not paying for it but feel blessed to be receiving it.

I am feeling heaps better, my eyesight is about 95% normal now and have stopped having to wear a patch alternating between each eye every hour. I still haven't driven, but hope to after this third treatment.

I was pretty worried there for awhile I can tell you all that, when the doc said that it can't be cured but it can be 'managed' and that I would have to have patience as it can take a year or more to find the right thing to manage it, I thought I was really screwed as it was so debilitating. Thankfully in this small country hospital an hours drive North of me a brilliant lady neurologist has only just started to come down from Sydney two days a week and I was one of her first patients. She is one of the most caring Doctors I have ever had the pleasure of meeting. She said the condition is so rare that most GP's would start and end their career without ever seeing a case......I wish my lotto tickets were so 'lucky'.

Once again....thank you one and all from the bottom of my heart for your caring concerns.